The Special Olympics was really…special!

20130406_151119My son participated in his first Special Olympics swim meet this spring.  I wasn’t sure what to expect, if he would get anything out of it or if my other two crazy children would cooperate while we waited for his race.

It started out as I expected…a little disorganized and behind schedule, my six year old whining and my three year old coming dangerously close to falling off the bleachers.  Then my son’s name was called and he and my husband were off to the starting line.  They had been practicing together since November and we decided he would do best with Dad in the water.

After some hesitation (due to the fact that the starting line was at the opposite end of the pool from where he usually enters), he got in and started swimming.  His heat was for people who needed assistance, either from a flotation device or from another person.  My son wore a flotation device on his back, but powered himself alone.

That’s the part that impressed me.  Watching his little fifty pound, eight year old body propelling itself forward, slowly but surely, all the way across the pool.  Smiling the whole way.  Children with Down syndrome often have low muscle tone and poor coordination.  They can tire easily.  My son does.  But he can also swim the length of a swimming pool all by himself, using the coordination he does have and pushing through that water with those not so toned muscles.

I watched as he swam across the water.  I pictured him in the NICU after he was born, swollen and red and fragile.  I pictured him during his illnesses, pale and weak and struggling for breath.  I pictured him after his surgery, thrashing in pain.  Then I looked at his big smile coming toward me.  He was so proud.  I was too.  I saw only strength and joy.

Everyone was cheering.  My son was happily distracted by it.  He has always loved an adoring crowd.  Lucky for him, he will always be surrounded by one.

Special Olympics swimming

Stronger Than Me

I hate being sick.  I am terrible at it.  It makes me miserable and angry (ask my husband).  I don’t take it lying down.  I curse at it.  I resent the time lost and dwell on the tasks undone.  I despise my body for betraying me.  For letting me down.  For preventing me from operating at full capacity.  I don’t have time for that shit.

Fortunately, (for everyone) I don’t get sick often.  This winter, I was sick for the first time in three years.  I reacted exactly as described above.  While I complained and whined and cursed the nasty virus that struck me down, I thought about my college roommate.

I thought about the night I met her.  I pictured her sitting on the floor of my room in the house we shared as I unpacked my things.  Arms wrapped around her knees, talking and listening.  The conversation came easily and we were instant friends.

I thought about sitting across from her at dinner.  Her and I made “real” meals together.  Actual chicken (shake and bake) and veggies (frozen) and noodles (from a box).  Pretty classy by college standards.  She would sit and say “Mmm Mmm Mmm,”  as we bragged about our gourmet meal to our other housemates.  (They were so freaking jealous.)

I thought about playing beer pong in our basement and drinking shots of rum and grape Kool aid.  And dancing.  Crazy, dizzy dancing that involved loud singing and jumping and smiling until our faces hurt.

I thought about lazy weekends.  I pictured her on the couch in our living room watching cheesy Lifetime movies and eating take out.

I thought about watching the only girl fight I have ever seen.  (Which may or may not have involved her kicking someone’s ass while I watched in shock and admiration)

I thought about her dancing at my wedding.  And about how happy I was to meet her fiancé and to attend her wedding shower.  And how amazing she and her husband were with my kids a year later when met for a winter walk at a park.

I thought about the phone call I got a few weeks later.  The news shook me, but her voice never wavered.  Breast cancer, she said.  This isn’t going to kill me, she said.  This is just something I have to get through, she said.  No tears.  No nonsense.

I thought about the timeline.  Done by next year at this time.  Back on track with her life’s plan.  One year later arrived and all was well.  I admired her strength and courage and ability to remain calm and focused.   She did it.  I knew she would.

I thought about the phone call a few months later.  The cancer was back.  In her lungs and inoperable.  She talked matter of factly about leg surgery and being unable to climb the stairs in her house.  She was in her early thirties.  I felt angry.  I’m sure she must have too, but she never said it to me.  She kept me up to date on her condition and asked what was going on in my life.

I thought about her concern for her husband.  About how she joked over lunch that if anything happened to her, he wouldn’t know how to access their bank accounts.  She would give him a tutorial just in case.  She talked about him often.  She thought about what he needed.  About how he was suffering.  So completely selfless.  So very in love.

I thought about the last time I saw her.  My five year old saw a money jar in her living room and forwardly asked if he could borrow some.  She quickly grabbed her wallet and made his day by giving him some change.  She had made so many of my days just by being there.

I thought about one of our last conversations.  The cancer was in her brain.  She talked about her weekend away with her husband and time at the beach with family.  She talked about how there were still more medications to try.  The doctor said they would keep trying.  If she knew she was close to the end, she never let on to me.  Still no tears, no complaints.   Just unbelievable courage.

I thought about the voice mail I left her the day before she died.  I thought about the snow on the way to her funeral.  I thought about how there is no way that all she was could fit into the tiny box they wheeled up the aisle of the church that morning.

I thought about her strength.  Since the day I met her, she personified strength.  I admired her for it then.  I am in awe of it now.  I don’t know how the hell she fought the fight she did.  I was pissed at a virus that would be over in a few days.  She had been fighting for her life.  But she was much stronger than I was.

I would like to say that all these thoughts made me stop being a miserable sick person, that I sucked it up and showed a little of the strength I saw in her.  But that would be a lie.

What these thoughts did do, was make me even more thankful to have known her.  Thankful that someone that kind, that honest, that fun, that strong would call me a friend.  Thankful to have spent a year under the same roof–laughing, crying, singing, dancing and really living with her.  Thankful that we kept in touch.  Thankful to have told her she was one of my all time favorite people (she totally was).  Thankful she met my children.  Thankful for that last hug and that I can still remember the sound of her voice so clearly.  And see her smile.  And picture her dancing.

As for getting angry at illnesses and life’s other annoyances, I’m guessing she would advise me to be strong and positive.  She would probably tell me not to be so miserable.  She would encourage me to embrace every moment I have here whether those moments are ideal or painful.  I’m pretty sure she wouldn’t want me to complain or feel sorry for myself.  As her passing tragically proved, we don’t have time for that shit.

In loving memory of my roommate and friend, Liz,  who fought like hell to stay, but left this world too soon. 

Motherhood Unexpected

Motherhood is full of surprises:  The obvious shock of discovering it is far more work than I ever imagined, the exhaustion of the constant worry over the well being of someone other than myself, the dramatic realization that nothing could have prepared me for the intensity with which I love my children.

There are the sentences I never envisioned saying:  Get your hands out of your butt, stop licking your shoes, I never ever want to see a boogie on the wall again, get your hands out of your butt…again.  There are the things I never imagined doing:  Cleaning poop off the walls and out of the tub and off the carpet, explaining “lady parts” to a three year old big brother, staying up all night to listen to the breath go uneasily in and out of a sick child.

All these things were unexpected when I was dreamily waiting for my children to arrive, but truthfully they didn’t shock me all that much.  This was motherhood.  I was following in the footsteps of all the mommy warriors before me.  I was equipped for this.  I would not be shaken by poop or snot or vomit.  Or lady parts.

No, what shook me was something more subtle, something I didn’t expect.  Something I should have known.  What truly shook me to my core was the realization that, in some ways, my children were nothing like me at all.  And I had no idea how to bridge the gap between us.  We are so quick to see the similarities.  She likes the guitar just like mom, he has an eye for bugs just like dad, he has my wavy hair, she has my sense of humor.

But early on, the differences showed themselves.  And of course they would.  I think of my own parents and how little I have in common with them.  There are some similarities, sure, but my experiences in the world are completely different than theirs.  I took my own path and in some ways it looks markedly different from theirs.  So why was I surprised when my own children were so different from me?

I think as moms we want to do whatever we can to help our children succeed, to feel safe, to be happy.  When we discover that our child is so different from us that we don’t know how to help him, it scares us.  All the tricks we had up our sleeves for helping our kids, before we had kids, are out the window.  We need to find new ways to relate, to learn together, to connect.

The beauty of the differences between parent and child is that both have so much to teach and so much to learn.  We can be open to our child’s view of the world and share ours lovingly.  We can immerse ourselves in our child’s passions and show him the things that inspire us.  We can honor who our child is and he will likely return the favor.  We can find common ground in our immense love for one another.

This Mother’s Day, I wish you many moments of discovery.  May you continue to discover the uniqueness of your children and with it, your own ability to honor that uniqueness.  Enjoy the fruits of your labor.  These little beings are one part you and lots of parts awesome.  Know that together you are a force to be reckoned with.

Happy Mother’s Day!

This post was written as part of a special Mother’s Day project created by the Pottstown Mercury Town Square blogging community. 

Ninjago Legos and six lessons learned as a result of following our kids’ interests

Ninjago is a fascinating Lego series (to kids…and their dads) that has been made more enthralling by the dvd series released with it, chronicling the adventures of the young ninja.  There is enough intrigue and danger to make it more exciting for “big kids” than your average “little kid” show, but it is not too scary for my sensitive almost 6 year old.  We have been immersed in Ninjago since last summer and some unexpected learning opportunities have arisen as a result.  Here are six lessons we learned by following our kids’ interest in Ninjago Legos:

1)  A Lesson on Pagodas

Reading Pagoda

Reading Pagoda

The fictional city of Ninjago is set in what appears to be an Asian village.  The Ninja Training School looks like a pagoda and caught the attention of our boys.  Coincidentally, we have a pagoda right here in Pennsylvania!  A short drive from our house, in Reading, PA,  a pagoda has stood seven stories high since 1908.  This was a perfect time to visit.  The Reading Pagoda is open a few hours a week for tours.   We pulled up to it after dark and my oldest exclaimed, “Ninja school!”  Just the reaction we were looking for!

Reading Pagoda ninja

Ninja moves at the Pagoda

After the trip to the pagoda, we spent some time talking about pagodas in general.  We looked at pictures and even learned a little bit about Buddhism.

Building a Lego pagoda

Building a Lego pagoda

We tried to build our own pagodas with Legos and painted pictures of pagodas.

Painting a pagoda

Drawing and painting a pagoda

2)  A Lesson on Chinese Writing

The scrolls in Ninjago are written in what looks like Chinese characters.  Whenever my oldest son sees this type of writing, he talks about Ninjago.  I decided to explore this and we looked up words in Chinese online.  The kids loved trying to paint the characters.  They learned that there are many languages and many ways of writing.

Painting Chinese characters

Painting Chinese characters

DSC034353)  Reading is fun!

We have two early readers in our house.  My 8 year old (who has Down syndrome) and 5 year old are at about the same reading level right now.  They are just discovering the magic of reading.  We recently started reading chapter books to them and my 5 year old excitedly said, “It’s like there is a movie in my head!”  The first chapter books we read were Ninjago stories.  We also have a few Ninjago graphic novels.  My 5 year old can sound out some of the words in these and I happened upon this scene the other morning…two boys discovering that reading is a way to explore the things you love and go on exciting adventures in your mind.

Ninjago comics

Reading Ninjago comics together

4)  Play Skills Can be Taught

My oldest son struggles with play skills.  His communication skills are delayed, he has sensory issues and there are also cognitive deficits.  He rarely engages in true imaginative play.  He is more of an observer.  Ninjago has changed that.  He is a visual learner and loves watching movies.  The connection between the dvd and the Legos has led him from observation to action.  I have watched him using the Lego figures to act out scenes similar to those on the dvd.  The dvds have given him a script to follow, making the difficult skill of play a little easier for him.

Ninjago Legos

Playing Legos

5)  Museums are cool

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Lego throne

Our interest in Legos also took us to the Reading Museum to check out the visiting Lego exhibit.  There were lots of Lego activities, several play areas, a jousting and dress up section and some intricate Lego constructions.  My kids’ favorite part was a boulder launching simulator.  They had the opportunity to virtually construct a Lego wall and then catapult a boulder toward its image on screen to test its strength. This exhibit runs until May 5, 2013.

20130224_141059The museum is small and the perfect size for our 8, 5 and 3 year old to get a taste of what a museum is all about.  We spent about two hours checking out natural history, medieval garb, paintings, mummies and lots of other educational exhibits.  There was even a Jelly Belly exhibit showing famous paintings recreated with the colorful candy.  It was an excellent way to expose the kids to art and to wet their appetite for the fun and learning we can have at larger museums.

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A little more Buddha

A little more Buddha

"Ninja writing"

“Ninja writing”

"Ninja swords"

“Ninja swords”

The museum also has a planetarium and an arboretum.  We skipped these on our first visit but plan to return and check them out.

6)  Legos Make Great Math Manipulatives

My 5 year old was required to make a “Hundred Day Project” for school.  He was to count 100 of something and bring it into school to show his understanding of the concept.  Using his interest in Legos, we decided to create a number line with minifigures.  All three kids got involved and had a blast counting.

Lego number line

Lego number line

Lego number line

Counting Legos

Your child’s interests are a powerful indicator of what he is ready to learn.  Be observant.  Follow his lead.  Look for opportunities to expand what he is already passionate about.  Legos led us to lessons on world languages, architecture, math and reading.  Begin where your child’s passion begins.  From there, you can go anywhere. 

Magic Moments

Live music took hold of me early on.  I was sitting in a metal folding chair in a large gymnasium-like room at an Irish festival as a kid.  There were musicians on stage singing the Irish songs I knew by heart and others I had never heard.  I was mesmerized.  I felt alive in a way that I didn’t yet understand.  I didn’t want to leave.  I wanted to stay in that room, in that magic, forever.

As life went on, I came to realize the feeling I experienced that night would consume me every time I heard live music.  Perhaps it was in my blood.  Perhaps it grew out of the comfort of listening to my dad’s voice and guitar lull me to sleep at night or gently wake me from my dreams in the morning.  Perhaps those Irish musicians were wildly talented and I couldn’t help but be drawn in.  Who knows why we love the things we do?  I do know that once we find something we love, the world opens up to us.  We see in color.  We live in dreams.  A beautiful soundtrack plays in the back of our minds as we move through our days.

I want my children to love something the way I love music.  I want them to feel alive and joyful and inspired when they find it.  I want to provide them as many opportunities to find what they love as I can.

A few weeks ago, we considered venturing out past bedtime to a local coffee shop to listen to a group of musicians.  I worried the kids would be too tired.  I worried they would be bored.  I worried they would be disruptive.  A bigger worry though, was that we would stay home and miss the opportunity to experience music, to see people who love something passionately preform, to learn about instruments.  So, we went.

We slipped in the back door and made ourselves comfortable on a cozy couch.  There must have been about 25 musicians in a large oval in the middle of the room.  There were guitars and violins and cellos and harmonicas and mandolins.  It was a jam session.  People took turns playing songs while the rest of the large group accompanied.  My oldest gave in to his sleepiness and the soothing sounds and put his head back and relaxed.  My two younger children were fascinated by the instruments and examined them as the musicians played.  The night was a success.

For me, it was an opportunity to experience something I love.  For my kids, it was one of many experiences that just might shape their lives the way that night at the Irish festival shaped mine.  I know their love may find its way to things other than music and that’s okay.  My only wish for them is that they have moments in which they feel alive in a way they don’t yet understand.  Moments they don’t want to end.  And once they find them, I hope they stay in those moments, in that magic, forever.

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World Down Syndrome Day Lesson Plan

World Down Syndrome Day is on March 21st (3/2), chosen to represent the 3 copies of the 21st chromosome expressed in individuals with Down syndrome.  The following lesson plan was created to help raise awareness in my son‘s second grade class about Down syndrome.  In addition to the plan, I put together a display about Down syndrome and about the fun and exciting life being lived by my son, who has it.

DSC03463

1) Read, “The Extra Book,” which provides a simple explanation of Down syndrome.

Other possible books are, My Friend Isabelle and I Know Someone With Down Syndrome.

2) Allow children to ask questions about Down syndrome.  Answer questions and share information about people with Down syndrome:

People with Down syndrome can learn and do anything that you can learn and do.   Sometimes they learn in a different way. 

Their bodies sometimes work differently too.  They may need to move in different ways to make themselves feel comfortable.  

They have lots of things to share, but they may communicate differently.  They are good at some things and have to work really hard at others, just like you.  

People with Down syndrome are different from you in some ways, but are like you in many ways too.  How are they different?  How are they alike?

3) Tell children they are going to learn three big words to help them understand Down syndrome.  (chromosomes, Trisomy 21, karyotype)

Chromosomes

Chromosomes contain information that determine things like what color your eyes will be or how tall you will be.  There are billions of tiny cells in our bodies and most people have 23 pairs of chromosomes in each of their cells.  That is a total of 46 chromosomes in every cell.

Down syndrome (also known as Trisomy 21)

A person with Down syndrome is born with one extra chromosome in each of their cells.  Instead of a pair of the 21st chromosome, they have three.  That is a total of 47 chromosomes.

Karyotype

A karyotype is a picture of the chromosomes in your body arranged in an organized way.  The karyotype of a person with Down syndrome looks different than the karyotype of a person without Down syndrome.

Activity #1

Children will work in small groups to create a Down syndrome karyotype.  Numbered poster board will be provided.  Children will arrange 23 pairs of chromosomes (small pieces of thread) on the board.  They will add a third chromosome to the 21st pair to show the extra chromosome present in the cells of people with Down syndrome.

Karyotype activity for world Down Syndrome Day

Small pieces of thread and numbered poster board are used to create a Down syndrome karyotype.

Activity #2

Create a Venn Diagram as a class or individually showing the differences and similarities between people who have Down syndrome and people who do not.

Venn Diagram Worksheet

The (sometimes funny) reality of Down syndrome

Down syndrome used to be a scary thing to me.  I had a vague idea of what it meant, but tried not to give it much thought.  Having a child with Down syndrome was something that happened to other people.  Until eight years ago.  When my first son was born.  And just like that, I was other people.

551993_3709787225597_610305323_nWith the diagnosis came doctors and therapies and low muscle tone and feeding issues and delayed development and IEP meetings and lots of worry and second guessing and puzzle solving.  With the child came affection and smiles and giggles and determination and intelligence and kindness and energy and strength and silliness and love.

DSC07290Down syndrome is not the all consuming thing it appears to be when you are on the outside looking in.  It is one part of our lives.  One part of my son.  While Down syndrome does provide challenges for him and for us, it also makes him who he is.

20130126_185832In the past, I have written about how he inspires me and teaches me, but another part of the reality of living with a person who has Down syndrome is that he has some very quirky behaviors that can be both maddening and amusing.  In celebration of World Down Syndrome Day this month, I wanted to share the sometimes funny reality of Down syndrome and a little bit of the real Josh.

DSC03453Objects are forever going missing in our house.  Laundry items disappear without a trace.  Prized possessions of siblings are stashed.  Eyeglasses vanish.  Remote controls evaporate into thin air.  There are the usual hiding places–behind furniture, in the hamper, under the bed.  Even people who don’t live with us know these hiding spots and search them immediately when they can’t find their keys or purse upon departure.  There are the trickier spots, ones that take days or weeks to discover like the glasses behind the dresser,  the relative’s camera stuffed into a Christmas stocking and hidden in a closet at a family gathering or the cordless phone that has never been found.  We don’t know his motives for the constant hiding.  Perhaps it is clutter management at its finest.

Imperfect foods are also on his list of things he would like out of sight.  I have watched the surprised faces of relatives as food is dropped in their laps or onto their plates.  If the french fry doesn’t look right, the french fry must go.  No amount of redirection from us has changed this behavior.  It is some sort of rotten french fry instinct.  So, if you happen to be sitting to his right, you are going to be getting some ugly, misshapen fries on your plate.  Or in your lap.  Or flying through the air in front of you.  If you don’t feel you can preform these french fry receiving duties, please let us know and we’ll change your seat.

And speaking of food, this is a child who wouldn’t touch a piece of candy until he was eight years old, but will eat an entire grapefruit in one sitting.  To this day, the only candy he will accept is a “butter cup,”  a Reeses peanut butter cup, the traditional shape and size.  No holiday shaped or miniatures accepted under any circumstances.  Saltines are still his snack of choice and we often find the underweight cracker muncher hiding out in his sister’s princess tent trying to down an entire sleeve that he has secretly taken from the cabinet.

If Josh loves something, everyone knows it.  He will ask for it every single day.  Movies, restaurants and favorite people (even those who live hours away) are sought daily.  Requests to go to the beach house (which we only visit once a year) are made year round.  He asks once and gets a no.  He asks again with a bigger smile and a high pitched inflection at the end of the question for emphasis.  He gets a no and a laugh and he laughs in return.  To him, every day has the potential for greatness.

While he can be entertaining, he also likes to be entertained.  The thing that most entertains him?  My suffering.  From a very young age, he would go into hysterics if I tripped or startled.  Any mishap I suffer, sends him into fits of giggles.  But the thing that really gets him going…is grossing me out.  Sometimes it comes in handy.  When he has a sinus infection and his nose has to be suctioned, he lets me do it because I gag with each extraction.  I get great photos of him if I pretend to gag between shots.  I am talking, falling over, floor slapping, can’t catch his breath hysterics.  I am hoping never to be in a situation where I am injured and need his assistance.  I doubt he could do much while doubled over with laughter.

20121202_105719There are so many stories I could share about my son.  Some are funny, some are sad, some are inspiring, most are happy.  I don’t know how people on the outside see him, see us.  This year on World Down Syndrome Day, I hope people get not only a sense of the inspiring, heart warming, up side of Down syndrome, but a real sense of the normalcy of it.  Josh is a contributing member of our family.  He is an equal part of what makes us, us.   He matters no more or no less than any other member of our family.  He brings with him talents and struggles, good days and bad days, failures and triumphs.  The rest of us do the same.

DSC00707The combination of what we all bring with us makes our family a force in this world.  Josh is a vital part of that force.  Just as he is one part of us, Down syndrome is one part of him.  Down syndrome isn’t so scary.  It is one little piece of the miracle that is my son and therefore, one little piece of the collective soul that is our family.

232323232%7Ffp53273)nu=4695)247)239)WSNRCG=345862658532 nu0mrjWorld Down Syndrome Day is on March 21st (3/21), chosen to represent the three copies of the 21st chromosome expressed in individuals with Down syndrome.  Celebrate World Down Syndrome Day by learning more about Down syndrome at http://www.mcdsig.org/ or http://www.ndss.org/ .

Bringing Back the Mix Tape

I am a long time lover of mix tapes.  I made my first ones as a young teen sitting anxiously by my radio all day, fingers hovered over the record button waiting for the first notes of a favorite song to play.  Every song on the tape started with a kind of whirring static and often ended abruptly with a cut in by some cheesy DJ’s idea of wit…but I loved them.  I absolutely loved them.  They were like air to me back in those days of uncertainty and teen angst.  After creating them, I would play them in my Walkman cassette player over and over and over.

I made mixes for other people.  In retrospect, one slow, sappy mix that no self respecting 19 year old guy would listen to could have been the final blow to my only high school romance.  And I am lucky that my husband stuck with me after the romantic mix I unleashed on him early in our relationship.

In college, I moved on to cd’s.  I made mixes that made me feel energetic and motivated, ones that made me feel nostalgic and mushy and ones that were down right depressing all full of “Love Hurts” and the like.  Even after college, I made soundtracks for weekends with cousins and upbeat mixes for road trips.

Mix tapes were instrumental to my well being for as long as I can remember.  So, this winter when the sky turned gray and the wind started to blow, I started to think about songs that would take away the chill and keep us singing until spring.  I picked some of our family favorites out of our cd collection and put them all on one “feel good” disc that we could pop in whenever winter got us down.  These songs really can brighten a dreary winter day and I am already thinking of songs for next year’s mix.

Here is a list of family friendly feel good songs that will get you through the winter…

Song Title

Artist

 Time to Smile    Xavier Rudd
Say Hey (I Love You) Micheal Franti and Spearhead
Set Sail  The Movement
Gone Today (Acoustic) SOJA
Jamming B is for Bob (Bob Marley kids cd)
Messages Xavier Rudd
Sweet Summertime The Movement
Ho Hey    The Lumineers
Wavin’ Flag  K’naan
Fears Fear Nuttin Band
Upside Down   Jack Johnson
With My Own Two Hands Jack Johnson and Ben Harper
Spirit Bird  Xavier Rudd
Bleed Through SOJA (original version, remix has some language)
Talk of the Town Jack Johnson
Comfortable in My Skin Xavier Rudd
Follow the Sun   Xavier Rudd
One Particular Harbor Jimmy Buffet
Feeling Alright   Rebelution

Truth be told, I still have those old mixes that I taped from the radio in my childhood bedroom.  While my taste in music has changed dramatically and I rarely listen to them, it is comforting to know they are there if I ever need them.

Making mixes of music for others is not exactly legal, so it is best to stick to using music you own to make mixes for your own listening pleasure.  I have seen six of the above artists live and am thankful for the inspiration they provide in my life.  If you like any of the tracks listed, please support the bands by visiting their websites and buying their music!

Testing my “limiting beliefs”

While reading a post from one of my favorite travel/personal development bloggers, I started to consider how often my thought process holds me back from new experiences.  Niall Doherty, from Disrupting the Rabblement, suggests that we have “limiting beliefs”  that are often false and may hold us back from new experiences.  To kill these limiting beliefs, he suggests having more “reference experiences.”  These are experiences that push us outside the realm of our minds and into the real world to disprove those limiting beliefs.

I am often guilty of letting my limiting beliefs keep me from experiencing life to the fullest.  For as long as I can remember, I have let thoughts brought on by shyness or anxiety sway my decisions to do or not do something.  Shyness and anxiety both bring countless limiting beliefs to the table: people might think I’m weird/ugly/stupid, I won’t be articulate, I could get hurt, the kids could get hurt, the kids might have a melt down, we might have an awful time, etc. and on and on.  These limiting beliefs are not facts.  I haven’t tested them to see if they hold up in the real world.

Niall suggests, “You can’t kill a limiting belief with logic. But you can often kill a limiting belief by getting out there and putting it to the test in the real world, by actually experiencing that logic at play.”  It is completely against my instincts to shut out those limiting beliefs, but this idea has me motivated to try.

I had a chance to do so on a bitter cold and windy day not long after I read Niall’s post.  I got an email from a friend inviting us to go sledding.  My limiting beliefs kicked in immediately: 

It’s too cold.  My daughter hates the wind.  She will be miserable.  My five year old is having an awful day full of emotional ups and downs.  He will be miserable.  My eight year old hates having cold hands, but can never seem to keep his gloves on.  He will be miserable.  My husband and I are tired and managing three miserable kids on a sledding outing could put us over the edge.  We will be miserable.  It is REALLY windy.  Falling branches could be hazardous.  It will be a lot of work to get them all ready….(I know, my limiting beliefs are exhausting!)

Then I thought about the post.  I thought about testing all these limiting beliefs in the real world.

It occurred to me that I would rather go and have it suck than stay and wonder if it could have been awesome.

20130209_151726[1]So, we went.  And it was awesome.  But, even if it hadn’t been, it would have been real.  A real experience in the real world.  As parents, we owe it our kids to test our limiting beliefs.  As human beings with a limited number of years on this earth, we owe it to ourselves to experience all we can without letting our fears stand in our way.  Much of life is outside of my comfort zone, but I am determined to follow Niall’s advice and “Get out there and do more things.”

Bar Harbor, Maine

On every trip there is a moment.  It is the moment you feel the world opening up to you in a way it hasn’t before.  The moment you feel the value of travel intensely.  The moment that makes challenges you faced getting there seem insignificant.  The moment you see something new and magical.  It is the moment you will remember long after the trip is over.  For me, this was that moment…

Starfish Bar Harbor, Maine DSC09136 DSC09137 DSC09143 DSC09141During low tide in Bar Harbor, it is possible to walk to Bar Island in Acadia National Park.  The walk across is scenic and affords many opportunities for discovery.  On our first visit there, we discovered the starfish above.  It was so magical, we returned several times during our week in Maine.

Bar Island Bar Harbor Maine

On Bar Island with Bar Harbor in background

Once across, there are wooded trails to hike.  We checked them out, but turned back quickly so as not to get stuck on the island when the tide rose again.

Bar Island hiking trail

Bar Island hiking trail

In addition to the starfish, we found many other interesting things between Bar Harbor and Bar Island.

Sea Urchin

Sea Urchin

Walking back to Bar Harbor

Walking back to Bar Harbor (directly in background)

No matter what time we visited this fascinating spot, the views were amazing and the learning opportunities were endless.  Before our trip, I assumed Bar Harbor was a touristy town where shopping and eating were the main attractions.  Not so.  Nature abounds for those who are looking to experience it.

sand bar Bar Harbor Maine

Sunset between Bar Harbor and Bar Island

Sea Urchin skeleton (left)  Live Sea Urchin (right)

Sea Urchin skeleton (left) Live Sea Urchin (right)

A few shots from a midday visit to the same spot…

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Green Crab

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Island in the distance

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You will likely get wet and sandy exploring the sand bar so dress accordingly and always be mindful of the tide or you could end up like these people.

Bar Harbor does offer many unique restaurants and shopping opportunities as well.  There is also a pretty park in town with water views where we were able to find parking and have a picnic.  Nice public restrooms made the experience even easier.

Bar Harbor Maine

Park in Bar Harbor

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Bar Harbor park

View from the park in Bar Harbor

We tried one restaurant while in Bar Harbor.  Geddy’s has an interesting history and decent food.  The staff was pleasant and the atmosphere was family friendly.

DSC09700There is a lot going on in Bar Harbor, natural and otherwise and I would love to explore more of this town if we ever head back to Maine.

We saw so many things in Maine that we would never have seen in PA.  It was a great experience and motivation for more travel! You can read about our trip home to PA here.